Tuesday, October 26, 2010

Awesome ETSY find...

I love ETSY!! I have been looking for some labels that won't wash off of Emma's cups when we send her to daycare or the church nursery. I kept writing her name on her cup with a Sharpie, but everytime I washed her cup it would fade off. Not anymore!! I stumbled across this shop and this is a really reasonable price for you momma's needing labels for your childrens bottles, cups, etc... Take a look! 30 labels $11.99 and free shipping!



Dishwasher Safe Labels - 30 labels - Free Shipping

Dishwasher Safe Labels - 30 labels - Free Shipping

Monday, October 25, 2010

On the line...Part 2

the rest of the story....

so, where do we go from here? I have put in numerous hours of research into different supplements that are suppose to be comparable to what he is on now. We are now in the process of cutting his dosage of the Risperdal and titrating him off of it altogether. We have started introducing Melatonin. The first night at 4mg and it took about 2 hours before he fell asleep. The second night we increased it to 5 mg and he didn't fall asleep until 3:30 in the morning. I wonder if his body is just use to the high dose of medication to fall asleep? Either way, I know it is going to take his body some time to adjust. I am also getting him and Emma both a weighted blanket. I have heard such great reviews from people using them.

So far, the change in teachers/classroom has helped. He is a little more comfortable. He has had just a couple of instances when things didn't go his way. Last week, I had to make a trip up to the school because Blake got home and I called like always when I know he's home with my brother, to see how his day went and come to find out, some kid in PE punched Blake's tooth out. Blake was pushing the boys arm to get his attention, he wanted someone to talk to, and the boy told Blake he was bothering him and then PUNCH. This is NOT OK!!! I guess good thing is, it was a baby tooth and not a permanent one. What REALLY got me was, the coach didn't call, the teacher didn't call, the nurse didn't call, no email, no phone call, no letter sent home! This made me hit the roof. I can't remember when I was this angry. The nurse gave him a bag for his tooth. I made my way up there the next day and Blake and I had a talk with him. I was assured he would get to the bottom of this and of course, I haven't heard back...yet! =) I am calling this afternoon to find out what is going on. At the visit with the Principal, we found out a kid in Blake's class has been begging Blake to share his lunch with him and "he'll be his friend." I so wish Blake could understand what it means to be taken advantage of. All he wants is a friend. A true one.

About two weeks ago, I happened to talk to an old friend that I went to high school with. Her daughter has SPD, but she is leaning more into the Aspergers world now as we have the Aspergers, but seeing more of the SPD symptoms now. She shared with me the OT and ABA therapist that she used before the Army moved them and I called last week and we now have an appointment with the OT/ST this coming week. I really hope this is the open door we have been waiting for. Blake needs this. I want him to have some sort of being comfortable in his own skin feeling. I filled out the sensory checklist and was amazed..to say the least. It seemed like I checked 100 or more things. Maybe what I am learning from my blogger mama friends and their lives with their Asperger/SPD kids is opening my eyes to a new world for Blake. One I didn't know was out there. So, till appointment time...........

Wednesday, October 13, 2010

Tuesday, October 12, 2010

On the line....Part I

Wow, what a crazy week it's been.

As, I sit and ponder over it all, it's starting to all make sense. I won't lie and say I don't feel guilty for not recognizing things sooner for Blake. Now, the more I learn and see symptoms, I am acutely aware and find myself watching Emma like a hawk for anything. At times, I see beginning signs of the same things Blake did. BUT, at 17 months, is it a baby thing she's learning, maybe at daycare, is she growing out of it, or should I immediately ask for referral to a specialist and try to catch everything much earlier than I did with Blake. I think the main reason I missed a lot of things with Blake is because he was so sick much of his first 2-3 years of life. 8 hospitalizations for dehydration secondary to reflux giving him pneumonia and him immediately not wanting to eat. A fundoplication at 2 years old and immediately, medically, he was "fixed." Not one hospitalization since that surgery and no more problems with reflux, no medications. He was above target for his age. He could read by 3, talked good (fast, but understandable), loved to ride a bike (at the time), had (still does) a photographic memory and could tell you how to get to his favorite places. Sensory is everything I missed and I could kick myself for not realizing was a problem at the time. Very particular about his foods, textures, loud noises, eye contact, fascination with legos and Thomas the Train, all the stimming...bouncing, spinning, flapping, eye blinking, hitting, running into things, furniture, tantrums, not realizing danger, sun sensitivity...I could go on and on, thing is, I just thought all kids were different and he was like that because of being sick all the time when he was younger and now having to catch up to everybody else and he was on overdrive.

Preschool came and that's when I got the bombshell, something WAS different. The teacher suggested it was ADHD. Paperwork was filled out by myself and the teacher. I didn't take it in to begin with. I didn't want to hear news that my child, my whole heart, something could be wrong. I could tell by his handwriting and him never wanting to touch a pencil, it was going to be very challenging. During the summer before kindergarten, our pediatrician sent us to a psychiatrist for "testing." His testing consisted of asking a few questions, looked at the paperwork both the teacher and I did and said he has Aspergers and ADHD. Didn't say, we need to see a psychologist for testing or anything, just here's your diagnosis and here's 3 prescriptions. Talk about shock planet!! I don't remember driving home that day. I had never heard Aspergers at that time, no explanation of what it was, was there a cure, what the options were, just diagnosis and prescriptions.

What that doctor didn't know, is this momma isn't a here do this kind of momma. I am my child's only advocate and I'm not just going to throw him on some medication and take the easy way out without checking on the side effects. I did finally agree on letting him go on medication for ADHD so he could do well and learn at school. 5 medications later, we finally found one that agreed with him. His concentration got better, he was able to pay attention more, but outbursts, irritability and sensitivities continued. He was still not sleeping at all at night, so we agreed to try him on medications for this short term. It has helped him to sleep, calmed the tantrums some, BUT he has bad stomach problems (aching, constipation) from it and has gotten some worsening of tics (eye blinking, stuttering) associated with side effects from his medication. UGH!!! Poor fella. I just want what's best for him, in the here and now and in the long run. I have been thinking of taking him off of the night medication, but didn't want to take him off cold turkey and throw his system into a major fit. That would not be good for him, for me or I am sure for people he was around.

Part 2 next.....